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portada thriving with neurofibromatosis
Type
Physical Book
Author
Publisher
Year
2010
Language
English
Pages
132
Format
Paperback
Dimensions
22.9 x 15.2 x 0.7 cm
Weight
0.19 kg.
ISBN
1456358693
ISBN13
9781456358693
Categories

thriving with neurofibromatosis

Kristi Hopkins (Author) · Createspace · Paperback

thriving with neurofibromatosis - Hopkins, Kristi

New Book Imported to Netherlands
Delivery: 13 Aug - 20 Aug Shipping: 16 to 20 business days.
30,05 €
Import costs and 9% BTW included in the price ✅
30,05 €

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Synopsis "thriving with neurofibromatosis"

1 in 3000 people are born with Neurofibromatosis. It affects all of us in different ways. For some, Neurofibromatosis is as clear as the tumors on their face. For others, it hides beneath the surface, creating tumors that destroy hearing, vision, and more. Many of us are misdiagnosed, misunderstood, and often simply missed by a world of medicine that doesn't have a full grasp on all teh effects of NF. Stereotyped, ignored, or shunned by a world who thinks we either have the Elephant Man's disease, common migraines, or a few too many moles and birthmarks. In a society that values beauty so highly, NF'ers often choose to hide from others, and end up hiding from themselves. In 2007, Kristi chose to stop hiding, and start Thriving, as NF became a bigger part of my life than ever before, taking a firm grip on the health of three of my six children. Most people with NF, or any of a thousand other genetic disorders, focus on surviving from day to day. My kids deserve more than just to survive. And so do YOU. Thriving with Neurofibromatosis. We ALL have a story, this is mine.

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